I have Multiple Sclerosis. Multiple Sclerosis...what a name. What do you do when a Dr. says you have this disease. You cry, you feel self-pity, you ask why then you suck it up and learn to live with it. I never wanted anybody to know or care. I don't like pity. People don't understand what its like to have chronic pain everyday. How do you explain something that isn't visable to the naked eye. Sometimes its your headaches, next day your neck. Then your back, legs...only thing that doesn't hurt is your hair. Of course your hair looks like hell...
Anyway I was diagnoised in 2004, probably should have been diagnoised earlier but this damn disease is crazy.
I had weakness on my left side, double vision, no balance, aching, numbness all over. And to top it off sick to my stomach. Went to the ER but they couldn't do anything until I saw the Neurologist. Had an appointment in 2 days. So I laid around like a vegetable for two more days. Already been off work 1 week...Dr. says I think or I am pretty sure you have MS. All I could say was "you think". I just hoped they could do something to make me feel human again. So they did. Gave me Prednisone and then for 3 days, 1 hour a day, I was given an IV of steroids. Amazely it worked...I could see again, the numbness finally went away, balance was still unsure.And I wasn't sick to my stomach anymore. But the steriods made be balloon up like a Thanksgiving Day Parade Balloon.
Oh well I was kinda back to normal, I eventually had to start using a cane, because my balance still hasn't or isn't what it use to be. Had 2 more episodes since, or exacerbations.
The fun of having a disease no really understands, no cure, some relief...lately just a lot of pain.
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